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The Welsh Government has announced this week that patients in Wales should have access to Orkambi and Symkevi: life changing drugs for people with cystic fibrosis. There is now an agreement in principal on terms with Vertex Pharmaceuticals, which should see highest priority patients accessing treatment in December and all eligible patients being offered treatment from 2020.
This follows years of work by Janet Finch-Saunders, Assembly Member for Aberconwy, with a number of constituents to see access to Orkambi secured.